Axial spondyloarthritis (AxSpA) encompasses a group of inflammatory arthritis conditions primarily impacting the spine, though other joints and even organs can be involved. We invite you to discover more about this range of conditions, their diagnosis and treatment options, and ways you can manage them effectively.
Living with axial spondyloarthritis (AxSpA) presents daily hurdles. There are two main types: radiographic axSpA, also known as ankylosing spondylitis, visible on X-rays due to damage to the sacroiliac joints and spine, and nonradiographic axSpA (nr-axSpA) which might not show on X-rays but can be detected through MRIs. We're here to guide you with expert advice, resources, and support to navigate through your AxSpA journey and alleviate its symptoms.
When your child receives a juvenile arthritis (JA) diagnosis, it's only natural to frequently check on their well-being. However, it's vital that your concerns don't inadvertently influence their outlook on the condition. Maintaining an optimistic and proactive stance can positively shape your child's view on living with arthritis.
Suzie Wright, an occupational therapist at Kansas University Medical Center, notes that children with even severe JA symptoms fare better when parents maintain a positive mindset. However, Mark Connelly, PhD, from the University of Missouri-Kansas City School of Medicine, reminds parents of the delicate balance needed: nurturing their child's independence in managing their condition while also offering emotional support.
After an arthritis diagnosis, it's common for family dynamics to shift. While it's okay for parents to process and grieve, regaining equilibrium swiftly benefits everyone. Parents should also be wary of overemphasizing their child's pain, as it can make the child hyper-aware and potentially hinder their coping abilities.
Overprotectiveness can lead to children doubting their ability to express or manage their symptoms. Connelly found that while overly protective approaches can limit a child's participation in usual activities, introducing distraction techniques, such as relaxation, can help them manage pain better.
Addressing pain medically is crucial, but parents can also guide their children to think positively and seek alternatives. For instance, if pain prevents an outing with friends, suggest a cozy movie night at home. Adopting a hopeful approach will inspire your child to develop robust coping mechanisms and self-belief as they navigate their condition. Remember, a JA diagnosis is just a part of who they are, and with a hopeful outlook, you can both see beyond it.
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